In 2013, The United Nations Human Right council adopted a resolution making today, 13 June, International Albinism Awareness Day.
My book Next to You features a romantic lead with albinism and a deep abiding love of 70s Bubblegum pop songs. The book is due for release on 25 July, but is available for preorder on Amazon, review on Netgalley, and is also up on Goodreads. Yay, right? Okay but why did I write a character with albinism?
A rather obvious parallel. Read on and you’ll see what I mean.
The un.org information regarding International Albinism Awareness Day states, “The physical appearance of persons with albinism is often the object of erroneous beliefs and myths influenced by superstition.” Even in the western world, images of albinism are often based on myths and superstition. Naturally, this is something William Murphy, the silver fox hero of Next to You understands. Will tries hard to educate other about the genetically inherited condition that affects his skin and, to less of an extent than many others with albinism, his vision. By the way, Will’s silver foxy because he’s 56, not because he’s albino.
I tried hard to dispel myths about albinism in Next to You, because when I began writing the story, so many years ago, I was surprised by how few accurate representations of persons with albinism there are. When was the last time you saw a person with albinism portrayed onscreen, in a book, comic, or graphic novel in a role that wasn’t a stereotype of evil or comic relief?
That sounds familiar, doesn’t it?
Usually I soapbox about the representations–or lack thereof–of women over 40 in romance fiction. I write women of of substance, not tokens, comic foils, secondary characters, or worst of all, stereotypes: the crone, the crazy cat lady, the granny, the cougar. I write for a female audience that can see themselves, not as cat-ladies, crones, or knitting-cookie-baking grannies, but as regular women—who just happen to be older. Next to You is no different. Caroline is over 45, Will is older and just happens to have albinism.
Have a look at the UN’s statement again: The physical appearance of persons with albinism is often the object of erroneous beliefs and myths influenced by superstition.
Modify the statement slightly: Older women (or Older people) are often the object of erroneous beliefs and myths influenced by superstition.
There you have my reason. Marginalised populations.
Appearances are deceiving. Myths, superstitions, and stereotypes are appalling. Like any man, Will has life baggage, but it has little to do with his skin and eyes. Like any woman, Caroline has life baggage. While Will’s less-than-perfect vision does play a role in the story, I did my best to write an accurate representation of a man and a woman finding unexpected love a little bit later in life, leaving out the erroneous myths and stereotypes of albinism and age.
The UN notes that the erroneous beliefs, myths, and superstitions about albinism foster marginalisation and social exclusion. The beliefs and myths about albinism are centuries old, are present in cultural attitudes and practices around the world. You see this marginalisation in TV, film, books, advertising. The same can be said about older people. However, stereotypes, myths, and superstitions about albinism put lives at risk, particularly in Sub-Saharan Africa.
Here is information about International Albinism Awareness Day from the UN website:
Albinism is a rare, non-contagious, genetically inherited difference present at birth. In almost all types of albinism, both parents must carry the gene for it to be passed on, even if they do not have albinism themselves. The condition is found in both sexes regardless of ethnicity and in all countries of the world. Albinism results in a lack of pigmentation (melanin) in the hair, skin and eyes, causing vulnerability to the sun and bright light. As a result, almost all people with albinism are visually impaired and are prone to developing skin cancer. There is no cure for the absence of melanin that is central to albinism.
While numbers vary, it is estimated that in North America and Europe 1 in every 17,000 to 20,000 people have some form of albinism. The condition is much more prevalent in sub-Saharan Africa, with estimates of 1 in 1,400 people being affected in Tanzania and prevalence as high as 1 in 1,000 reported for select populations in Zimbabwe and for other specific ethnic groups in Southern Africa.
Violence and discrimination against persons with albinism: a global phenomenon?
While it has been reported that persons with albinism globally face discrimination and stigma, information on cases of physical attacks against persons with albinism is mainly available from countries in Africa.
Persons with albinism face more severe forms of discrimination and violence in those regions where the majority of the general population are relatively dark-skinned. … In other words, a greater degree of contrast in pigmentation often gives rise to a greater degree of discrimination. That appears to be the case in some sub-Saharan African countries where albinism is shrouded in myth and dangerous and erroneous beliefs.
The manner in which discrimination faced by persons with albinism manifests itself, and its severity, vary from region to region. In the western world, including North America, Europe and Australia, discrimination often consists of name-calling, persistent teasing and bullying of children with albinism. Little information is available from other regions such as Asia, South America and the Pacific etc. However, some reports indicate that in China and other Asian countries, children with albinism face abandonment and rejection by their families.