Here’s the question I’ve been asked the most about my upcoming release Next to You:
My answer? Contact lenses and an old friend.
I wear hard contact lenses and I have a very fair-skinned dear friend who wore an eye patch when he was a kid. That’s him over there.
Yeah, yeah, how cute and all, but what’s that kid got to do with a hero with albinism?
Know how what you see isn’t always what you get, and how looks are deceiving, and that love is blind? I’m myopic (near sighted or shortsighted if you prefer). I also have astigmatism plus, being middle aged, presbyopia. Soft contacts won’t correct my crappy vision. A soft lens won’t sit properly because my astigmatism is too severe. Glasses don’t even give me great distance acuity. Rigid contacts, however, correct my vision quite nicely. Fortunately, rigid gas permeable contacts are a special order item that last a long time, Unfortunately they’re not cheap. The thing is, twelve years ago, when I wrote Next to You, which was then titled A Simple Overexposure (if you read the book you’ll pick where I got that title), I needed new contacts, and it was getting difficult to find an optometrist to fit them and keep the cost under $400.
Being such a tightwad back then, I went online to find companies that manufactured hard contacts, so I could purchase them directly—cheaper than I could from my $400 a pair optometrist. What happened during my search for cheaper is that I came across an article discussing hard contact lenses and vision correction in people with albinism. The article mentioned the use of an eye patch for amblyopia and strabismic amblyopia. Immediately, I thought of that fair-skinned, eye-patch-wearing kid up there, my dear friend, whose name happens to be Will—or The Dread Pirate Will, as he asked to be called in return for letting me use his photo in this post.
After some fond memories of Will, ones that involved us fake sumo wrestling and going to Monty Python film festivals, I found myself nerding out, reading more about vision conditions like strabismus and nystagmus–eye conditions people with albinism often have.
Then, I nerded out even more and began reading more and more about albinism, about the myths, the stigmatisation, and the stereotypes so often associated with the condition. In a bizarre way the stigmatisation and stereotypes reminded me of the way women of a certain age are stigmatised and stereotyped. I thought how stereotypes are, at their very root, a vision problem that can’t be corrected with contacts or an eye patch.
Suddenly, I had this image of middle-aged man with albinism; it was William Murphy, the suit-wearing, bubble-gum pop-loving hero of Next to You, and I knew there was more to this Will than meets the eye.
Five minutes after seeing Will’s image, I saw Caroline, a middle-aged, introverted, movie-loving heroine who isn’t exactly what she seems—because what you see isn’t always what you get, looks are deceiving, and love is blind.
Kind of like me without my contacts or glasses.
Next to You is out 25 July. You can preorder it now, from all the usual places: